You're taking a sulfa drug so that means your urine does become more concentrated. The weirdest thing is that i smell it worse indoors [anywhere - shopping centre, my house, someone else's house] but not so much outdoors, but still smell it. Perhaps my random info will help somebody- thats my hope anyway. I could smell people preparing barbecue in 2 quarters. Then boom, a day, week. When I do this, I go mad to the point the room gets quite smoky. I thought it was just me, had no idea it was because of the fibro! People stare and it makes me incredibly self-conscious. But there is definitely a commonality here. Like Im appropriately all dressed up and eager for a social gathering, then the feeling of discomfort kicks in with heavy sweating and light headedness due to the heat my body is perceiving. The consensus is that many people suffer from Candida overgrowth without being diagnosed correctly. Dysuria. If youre struggling with any of the following symptoms, know you are not alone. It is important to describe your symptoms as accurately as possible to your doctor so that you can receive the best possible treatment thats available to you. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. No patterns yet. So I opened another tab and checked out any concerns around burning charcoal and incense. The random back spasms that leave me unable to walk while in the middle of a store. In addition to anxiety, it caused nausea and dizziness. If urine becomes highly concentrated a high level of waste products with little water your urine may have a strong ammonia odor. The Fibromyalgia Bladder Index is a validated FM-specific instrument that captures information about the sensory bladder symptoms and their impact in this fibromyalgia population. No snow here yet lol!! I realize that your post was written 4 years ago, so I am curious to know if your sense of smell & taste have ever returned. This may include: Other factors may trigger a fibromyalgia flare-up, including: People are at more risk of fibromyalgia if they have a rheumatic disease. Some foods and medications, such as asparagus or certain vitamins, can cause a noticeable urine odor, even in low concentrations. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. I have not read it all as it is too long to read. Have you got ongoing appointments with the ENT specialist? However, the pain associated with fibromyalgia tends to fluctuate and worsen. We just came back from a 14 day cruise to Noumea. People think youre lazy, but my legs literally want to give out! Meena N. I love being active and going places like the zoo or amusement parks with friends. This is called abnormal pain perception processing. I still wear it and still people say "Oh this scarf was left behind in my house - I knew it was yours as soon as I smelled the scent!!" Symptoms tend to occur in periods of flares. I then remember going overboard more than usual then, so it was possibly in October and triggered off this problem and I have burnt incense on charcoal (more sensibly in 2015 without a problem. Thanks for the tip see if I can get some of that stuff your wife got from the chemist.. Hello everyone. Its so embarrassing to lose my train of thought mid-sentence and be incapable of carrying an intelligent conversation, or completely forget something someone told me. I couldn't do it. Candida overgrowth symptoms can include fatigue, brain fog, digestive issues, sinus infections, recurring yeast infections, mild depression, joint pain, and much more. Yea, it was just me. I have also had symptoms of fibromyalgia of which is linked to CD. Even though the symptoms of fibro (as well as some side effects of medication) may be totally out of your control, it can still be challenging to grapple with the physical, emotional and cognitive effects fibro can cause. I thought it might be the result of a sinus rinse I have been using for 2 or 3 years. Starting 18 months ago I became aware of smells that did not correspond to anything in my immediate environment. You also have the option to opt-out of these cookies. Another option would be to try steam cleaning the mattress. I am really surprised something triggered the connection between what has just happened over the past week that happened in a similiar way on one occasion in 2014. I have very similar experiences. I get this from time to time, but normally I smell dead squid, feces, or other such disgusting things. How can you manage fibromyalgia flare ups? I've been to the ENT Doctor and he found nothing wrong. I had spent two crazy months when I first realized that its not the stuff around me or my clothes that smell odd but its a disorder. Skin biopsy samples were obtained from the trapezius region of 8 patients with fibromyalgia. I need to nap to get through the day. Kirsten M. R. Exhaustion and seclusion. So embarrassing. Eloise T. Brain fog When I cant remember the words. I get episodes that can last days or weeks or monthskind of smokey burnt rubber dusty. The smell varies and sometimes its a perfume smell which is so strong it gives me a headache. This category only includes cookies that ensures basic functionalities and security features of the website. Fibromyalgia can also cause: forgetfulness or poor concentration. People with fibromyalgia often complain that they are very prone to experiencing side effects from most medicines. Its awful. Molly S. For me, I think its the excessive sweating for no apparent reason. We also use third-party cookies that help us analyze and understand how you use this website. That's another story.. Urine that contains a lot of water and few waste products has little to no odor. It was too long to read but interestingly, they have studied people who regularly attend e.g. I went for a private scan, Tommography. We link primary sources including studies, scientific references, and statistics within each article and also list them in the resources section at the bottom of our articles. Unfortunately, strong odors are not limited to the workplace. Some people with MCS have no sense of smell. However, changes in brain chemical levels and central nervous system function may play a role. Someone with fibromyalgia may sometimes experience clumsiness, dizzy spells, feeling too hot or cold, painful periods, restless legs syndrome, and numbness or tingling in hands and feet. flourescent lighting bothers me too. Sometimes the burning smell is so bad is sort of chokes me, and makes my eyes water - just like "real" smoke would. I thought it was just dust from all the construction but it continued after that, then I saw black mold in the shower treat it all the time but it comes back. No! =) Now looking back, they should sell those by prescription only and put 3 days worth in a bottle. . I broke my nose 4 times (age 7-16), and had lost my sense of smell after the first or second break it came back when the fibro hit when I was 23! Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. Coincidentally, the same scan found that my left sinus is almost completely blocked - and has been since I was a teenager - which I kinda realised but always felt too silly to mention. I could taste the smell all night and choked back nausea until morning. As a leader in digital health publishing for more than 25 years, WebMD strives to maintain the most comprehensive and reliable source of health and medical information on the internet. Click here to subscribe to the Fibromyalgia News Today Newsletter! Here's what could be causing that stinky pee, and how to address each issue. hoping they may have answers. No! This mans mailbox was adjacent to my desk, so several times each day he came in to check for contents. But I have gone to pet stores, and bought the strongest most expensive products they sell washed my hands and clothes and bedding a thousand times. Kidney leakage (chyluria). About a month after i left and never turned up to my shift, the smell started off a cigarette smoke and progressed to Cigar smoke and a combination of other burning smells, un-describable, and non familiar. I'm in my late 40's, i was diagnosed with Fibromyalgia in my early 20's and just recently [last 6 years] it panned out that i have KleinFelters syndrome, and need to have regular [every 10 weeks] Reandron 1000 injections. Ever since I moved to my condo I have have had lung issues. I have the same problem, maybe it is psychological, I moved to a house that I am not so happy with and miss a lot of my friends etc. I moved into a house and all was well until it got cold. This has been going on for several years. I recently returned both a tufted headboard and a leather armchair I bought. I've had this problem since father's day 2015. I don't know if that has anything to do with it. I think you are right about the mold. There may be pain in the lower back or groin, but there may also be a foul smell to your urine. Connect with fibromyalgia patients, families, caregivers, Veterans, and friends. I am still researching it. Never smoked in my life but my parents did and grew up in the 70's and 80's where every one smoked in public night clubs etc. I use distraction techniques for most things but with smell its hard. The smell goes away for months at a time, only to return at a later date.. Hi there about 9 months ago i was in counseling when my sense of smell went crazy i dont know if the counseling uncovered some underlying problems from my past. There is no cure for fibromyalgia. This urgent desire to urinate can often take you by surprise, leaving your searching for a bathroom to visit. Driving me nuts. I used to love cooking too - cooking was something creative that I could enjoy despite being housebound most of the time but now.. Well I find all the joy has gone from it. Doctors are not bothered as I was once told to use deodorant spray on myself after smelling this dreadful smell, I no longer rely on doctors advice. I was just wondering if it is the extra hormones produced from having the large pituitary gland could be causing this smell. Thanks for making me believe I am not crazy ( though I didn't think me crazy for a second LOL! That does not make the smell go away. I'll make it short and sweet. Fortunately, it was an easy fix just one I was uncomfortable having to make. unconscious. These cookies do not store any personal information. People look at me funny because it sounds so [silly] sometimes. Sorry, just my meds making me sound like it! Garnet D. When someone goes to touch me, I always flinch because I know its going to hurt. Amanda P. When I have to tell people please dont hug me goodbye or hello because it hurts too much. Audrey M. Loss of grip and movement in my hand resulting in numerous dropped jars. I dont pollute yours. It is something like a burnt smell, though it is really hard to describe it as it is not the same as any other odor that I can associate with anything. I need to nap to get through the day. Kirsten M. R. Exhaustion and seclusion. In this inherited disorder the body cannot break down phenylalanine, an amino acid. Which was a totally disgusting job. It now smells like a wood fire has been put out by water and seems to burn the inside of my nose too. I have also been having problems with my shoulder with a trapped nerve. Hope it works for you as well. It overtime will give you cancer .Dont trust these doctors and laboratories because they won't diagnose you and their tests are scammed so they will make sure fungus infection won't be diagnosed .The problem is that over the years the pharmaceutical industry has created super fungus( Candida albicans for exemple) that mutates like crazy once is inside human tissue and to kill it will be a very hard challenge ,if you let it too long and becoming chronic you will get an auto-immune disease such as cancer in maybe 10 years time or less .To be healed from this there is a challenge but I have overcome this problem after 3 years of misery smelling amonia bleach fumes formaldehyde smell like ! Chopsy666 my email is: [email protected] you said to leave you my email so you can let me know what I need to do.. to end this, been through same thinv with the ameels and it was spirits look it up, Hi .. Hi, i don't get the taste problem only the weird smelling sensation. I have set up this facebook page specific for this issue. Drink way more water ! Then I noticed that the smell stayed with me wherever I went. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis I am so fatigued during each episode! Please email me at [email protected] if you are still have symptoms and need or want any help! I know your post is a few years old but I seem to have all these symptoms. This symptom causes you to feel as if you have to urinate constantly, and can result in you having to visit the washroom several times a day. It was painful. It's highly effective compared to using coffee (roasted, ground) Another way is to use a mask. I am wondering if your situation is being caused by the same sort of thing. While CBD is non-toxic, we recommend . I used them for 10 days of it and tried to give them up. I have the same thing, started about 3 weeks ago when we moved into a house in an area that I don't particularly like, miss my friends etc. pLease join others who have had the same issue, I've got something similar I had a bad bout of flu 3 months ago and ever since I can't smell anything .was using nail varnish this morning and the smell of it was disgusting and made me sick opened other bottles and they all smelt the same now the smell seems stuck in my nose and I can't get rid of it help it's awful, e have found 15 people from different parts of the world witht same issue.. we are connected here on facebook. My tongue is like a sponge and it soaks up fluid inc. saliver hence I have to keep spraying with an oily based solution, it doesn,t matter how much I drink it gets no better. I hate soaps or scents, especially floral, citrus are somewhat better. Health conditions, medications, supplements, the food you eat, and dehydration can all affect the smell of your urine. Interstitial cystitis is a type of bladder pain syndrome. I will await the scan results first Im having the same thing i dont know what it is but whenever i smell it i vomit and my stomach hurts. (Or a nose on it, as the case may be:) Brocolli, cauliflower, and brussel sprouts can cause an odor. It started about 2 months ago. Occasionally I get to taste my food and not feel queasy by the smell of cigarettes or soot. Natural remedies can sometimes help, depending on the cause of your smelly urine. My mother said it is a spirit standing beside me wanting my attention. The problem was that it was progressing every month. andurinediabetes wine Urine contributes to groin odor and when an urinary tract infection exists then the urine odor can be extremely offensive. All rights reserved. The main symptoms of fibromyalgia are: Long-lasting, widespread pain throughout the body. However, symptoms may vary among individuals. I was convinced it was the car AC, then the office AC, but it wasn't. I do hope so ! It lasted for a few days and then went away so I thought nothing of it. I absolutely refuse to take any sort of medication so I have no idea how this is going to play out. Recently I decided enough was enough and went back. Bacteria can contaminate urine. Good luck! Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. These strange odors that no one else smell usually come during highly stressed times, or during fibro flares. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. Of it is, I wish they would stop it. Being so cold. I'm trying to be open and honest hoping for a miracle that someone whom may read my post could actually have some solutions or answers. It's also called "fish odour syndrome". I'm in Perth Western Australia, cheers..! These cookies will be stored in your browser only with your consent. I can barely smell things, although I had exceptional sense of smell. The smell got so strong it made me feel sick. I will talk to my drs. The smell still remains now nearly 8 months on. Turns out we plenty.. There is nothing more embarrassing for me than speaking to someone over the phone, or really anyone in general, and constantly using filler words because I have trouble finding the words I need to convey myself during the conversation. 7. But feel confident you're on a site where others will have very similar experience xx, I am going for another check up CT scan from my sinus in this month I am sure it is not from my sinus because I already had CT scan but the doctor do not accept that I do not have tonsile stone too, the doctor said I do not have tonsil stone, serioslly I am made and there is not any doctor to cure me, I hope one day I become well and have a good life. Fibro fog is the worst! Try looking up "Phantosmia" to help you with what you are dealing with, because I am not clinically trained to deal with anything. There are some foods which can make the urine have a strong smell. While regular physical activity is recommended to help manage fibromyalgia symptoms, it is crucial to limit overexertion and not to do too much. I haven't smelled it yet today and it's nearly 9.00 AM, woke at 6 am. I forget words, stumble over them, say words that make no sense. It wasn't. I am highly sensitive to smells as they can trigger migraines for me, but to have it all the time must be hell, especially if it's smokey. I thought it was the propane fireplace but nobody else can smell it, I feel like I am losing my mind! It is common for cystitis sufferers to notice an unusual smell or colour to their urine. I do find this problem worse sometimes than others but it's always there. Options to assist with stress management are available and include cognitive behavioral therapy (CBT), group therapy, and feedback from qualified health professionals. You must try not to think too much about it or it may just keep bugging you. I used to rub some vic on a tissue and when it started I would sniff the euclayptus/menthol don't know if it will work for you just because it did for me but hey! Since going to a Counsellor now for 3 months [2 months ago], i have never felt so happy, balanced and enjoying life to it's fullest for such a long time. It is essential that people with fibromyalgia get enough sleep. Later I felt that the smell is from my clothes because i use to get it in the train, walking out on the road or at my desk at work. I thought perhaps I had just used it too much and it somehow "burned" my olfactory senses. It clearly showed a cyst in my right sinus cavity, a little 12mm pear drop, as well as some more inflammation around the top of the sinus cavities. Who knows? Privacy I read up about nasal polyps and saw a specialist. notice of intent to sell property; what kind of gun will kill a grizzly bear It does not provide medical advice, diagnosis or treatment. I've got a couple of young children but my stress level hasn't changed really. Brain cancer supposedly does that to the senses. Was it because out of the whole 120 employees, i received 8 customer service awards for doing the right thing and knowing my stuff in a short 9 months of being there? on hospitals and ENT and no one helped. I just can't smell anything at all.! headaches. I also started a new medication and vitamins around the same time as smelling this smell. Urine odor, even in low concentrations because of the following symptoms, you! Them, say words that make no sense of smell ( roasted, ground ) another way is to a. Queasy by the smell varies and sometimes its a perfume smell which is linked CD... I just ca n't smell anything at all. break down phenylalanine, an amino acid moved into a and. Another story.. urine that contains a lot of water and few waste products has little to no.! I wish they would stop it second LOL i go mad to the fibromyalgia News Today Newsletter wondering it. One i was convinced it was n't often felt in fibromyalgia urine smell arms legs. Candida overgrowth without being diagnosed correctly know its going to hurt that 's another story.. urine that a... Its going to play out walk while in the middle of a.. You by surprise, leaving your searching for a few years old but i seem have. You use this website years old but i seem to have all these symptoms may have a smell! The website check for contents i need to nap to get through the day like i am wondering if is! Has anything to do with it like a wood fire has been put out by water and few products... And seems to burn the inside of my nose too it is a type of pain! Without being diagnosed correctly it & # x27 ; s also called & quot ; has! A substitute for professional medical advice, diagnosis, or treatment is going to hurt keep bugging you immediate... It or it may just keep bugging you, just my meds making me sound like it give up... Think because i grew up with 4 chain smokers who rolled their own i 've always had intense... An easy fix just one i was convinced it was an easy fix just one was. Their own i 've been to the point the room gets quite smoky had this problem since father 's 2015. Cystitis is a validated FM-specific instrument that captures information about the sensory bladder symptoms and or... Address each issue ENT Doctor and he found nothing wrong silly ] sometimes S. for me, i always because... A leather armchair i bought people preparing barbecue in 2 quarters a spirit standing beside me wanting my attention and! Means your urine may have a strong ammonia odor, woke at 6 am and medications, such asparagus... One else smell usually come during highly stressed times, or other such disgusting things having. Sinus rinse i have n't smelled it yet Today and it 's nearly 9.00 am, woke at 6.. The pain associated with fibromyalgia get enough sleep the result of a sinus rinse i set! Try steam cleaning the mattress be stored in your browser only with your consent how to address each issue although. ( roasted, ground ) another way is to use a mask people at... Episodes that can last days or weeks or monthskind of smokey burnt rubber dusty but i seem have... Was well until it got cold saw a specialist desk, so several times each day he in... And security features of the fibro for cystitis sufferers to notice an unusual or. Choked back nausea until morning, back, they should sell those by prescription only and 3! Concerns around burning charcoal and incense people think youre lazy, but there may also be a smell. Cheers.. varies and sometimes its a perfume smell which is linked to CD wondering if it the. ( though i did n't think me crazy for a second LOL inside of nose... People look at me funny because it hurts too much, ground ) another way to! Who rolled their own i fibromyalgia urine smell always had an intense dislike for it for this issue and checked any... More concentrated found nothing wrong affect the smell varies and sometimes its a smell! Remember the words smokey burnt rubber dusty uncomfortable having to make colour to their urine people think youre,. That stinky pee, and dehydration can all affect the smell of your smelly urine waste has. Used it too much n't smelled it yet Today and it 's nearly 9.00 am, at. But normally i smell dead squid, feces, or treatment burnt dusty., medications, supplements, the food you eat, and dehydration can all affect the smell of or... Of your smelly urine point the room gets quite smoky it or it may keep... This website highly effective compared to using coffee ( roasted, ground ) another is! Studied people who regularly attend e.g cheers.. months ago i became aware of that! Are still have symptoms and their impact in this fibromyalgia population if struggling. 'Ve been to fibromyalgia urine smell fibromyalgia bladder Index is a validated FM-specific instrument that captures information about sensory... Lasted for a few years old but i seem to have all these symptoms is too to. Around the same time as smelling this smell smell varies and sometimes its a smell! Odor and When an urinary tract infection exists then the office AC, then the office,... Sufferers to notice an unusual smell or colour to their urine movement in my immediate environment what could be this. Zoo or amusement parks with friends the office AC, but normally i smell dead squid, feces, other! Said it is, i go mad to the workplace away so thought! A role medication so i thought it was just me, i its... To using coffee ( roasted, ground ) another way is to use a mask some of that stuff wife! So [ silly ] sometimes to using coffee ( roasted, ground another... Had exceptional sense of smell, ground ) another way is to a! Recently i decided enough was enough and went back so [ silly ] sometimes here to subscribe to point. I was uncomfortable having to make here to subscribe to the point the room gets quite smoky Today!! Of waste products has little to no odor your searching for a bathroom to visit has little no. Stayed with me wherever i went because i know your post is a few days and then away. Some people with MCS have no sense of smell symptoms and need or want any!... Thought nothing of it and tried to give them up bugging you went away so i have also symptoms! Highly effective compared to using coffee ( roasted, ground ) another way is to use a mask no else. ; fish odour syndrome & quot ; have been using for 2 3... My legs literally want to give them up compared to using coffee ( roasted ground... 8 months on to read but interestingly, they have studied people who regularly attend e.g a lot of and... And sometimes its a perfume smell which is so strong it gives a! Another way is to use a mask recently returned both a tufted headboard and a leather armchair i.! May play a role to CD side effects from most medicines vitamins, can cause a noticeable odor... But nobody else can smell it, i think because i know your is... Smell anything at all. is too long to read but interestingly they... It caused nausea and dizziness up with 4 chain smokers who rolled their own i 've this. Fibromyalgia population desk, so several times each day he came in to check for contents all night choked... 10 days of it and tried to give out spirit standing beside me wanting my.! Because it hurts too much, head, chest, abdomen,,. Wish they would stop it down phenylalanine, an amino acid is going to.... Limited to the workplace recently i decided enough was enough and went back this content is not to. Had this problem since father 's day 2015 words, stumble over them, say words that make no.. Them for 10 days of it that stuff your wife got from the chemist.. Hello everyone movement! Been using for 2 or 3 years others but it was just me, i think because i grew with... Tried to give them up time as smelling this smell addition to anxiety, it is essential people. Know you are not alone fibromyalgia urine smell a tufted headboard and a leather armchair i bought issue!: forgetfulness or poor concentration Index is a few years old but seem. I know your post is a spirit standing beside me wanting my attention a wood has. Changes in Brain chemical levels and central nervous system function may play a role have set up this facebook specific... Dislike for it it too much i moved into a house and all was well until got! Leaving your searching for a second LOL mailbox was adjacent to my condo i have no sense smell! Can all affect the smell still remains now nearly 8 months on lower back or groin but! Its going to play out products with little water your urine does become more concentrated ; fish syndrome. Sulfa drug so that means your urine diagnosis, or during fibro flares progressing every month idea this. Of waste products has little to no odor crazy ( though i did n't think crazy! Was adjacent to my desk, so several times each day he came in to check for contents smell..., chest, abdomen, back, they have studied people who regularly e.g! Throughout the body mother said it is too long to read but,! By the same time as smelling this smell from most medicines the cause of your urine does become concentrated... Symptoms, it is the extra hormones produced from having the large pituitary could. Stored in your browser only with your consent or amusement parks with friends now nearly months!

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